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Welcome to Dystonia Ireland

The aims of Dystonia Ireland are to promote and encourage scientific research into the causes and treatments of dystonia, raise the level of awareness amongst the general public and the medical profession, offer support and information to all people with dystonia and their families nationwide. As the national support group for dystonia, we also represent the interests of our members with international support agencies and dystonia networks.

What is Dystonia?

Dystonia is a neurological movement disorder which may affect anyone at any age. It is characterised by involuntary muscle contractions which force certain parts of the body into abnormal, sometimes painful, movements or postures. Dystonia can affect any part of the body including the arms and legs, trunk, neck, eyelids, face, or vocal cords.

Latest News

Keep up to date with all that's happening at Dystonia Ireland.

My Neuro Survey: Patient Experience Survey 

Share Your Experiences of Living with Dystonia The Neurological Alliance of Ireland has partnered with the Neurological Alliance of England and the other alliances in the UK to produce three…
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Samuel Belzberg 6th International Dystonia Symposium

Summary for the Dystonia Community DMRF is thrilled to share this highly anticipated lay summary of the Samuel Belzberg 6th International Dystonia Symposium (IDS6), held in Dublin, Ireland last year.…
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Empowering Connections Event

Empowering Connections Event – September 11th from 6pm in the Talent Garden Inn Glasnevin DublinLet’s just imagine attending an event that is MORE THAN JUST MOTIVATIONAL, one where you are…
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CONGRATULATIONS to our Mini Marathon Ladies!

Bernie Drumgoole, Marie Drumgoole, Caitriona Williams, Clodagh Mooney Duggan, Lauren Flanagan We would like to say a huge Congratulations and Thank You to all the ladies who took part in…
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Get Rare Aware campaign

Thanks to everyone (35 organisations this year!) for your support of the upcoming Get Rare Aware campaign, launching next week. A few asks for you. We need patient voices for…
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Mini Marathon poster

VHI Womens’ Mini Marathon 2024

This year the VHI Womens Mini Marathon will take place on Bank Holiday Sunday 2nd June 2024. We would love to have you join us on the day for Dystonia Ireland and…
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