On-Line Support

The Internet serves as a valuable resource to people with dystonia who would like to communicate with others who have the disorder. These “on-line” services act as a support network which are available 24 hours a day, seven days a week. There are various mechanisms of communication including bulletin boards and chat rooms.

Dystonia Bulletin Boards
http://www.dystonia-bb.org/
 
Dystonia-related Bulletin Boards provides a forum to ask questions, seek advice, and just enjoy the company of others who are experiencing similar symptoms. In the bulletin board format, a person can post a message and others can respond to it. Archive and search functions of past postings are also available.

Specific bulletin boards are available for:

  • Dystonia
  • Blepharospasm
  • Musicians with Dystonia
  • Spasmodic Dysphonia