My Neuro Survey: Patient Experience Survey 

Share Your Experiences of Living with Dystonia

The Neurological Alliance of Ireland has partnered with the Neurological Alliance of England and the other alliances in the UK to produce three surveys, which aim to understand the experiences of people affected by neurological conditions such as dystonia.

Are you getting the care and support you need for your neurological condition? Everyone deserves access to the right care, treatment and support at the right time, no matter who you are or where you live. Unfortunately, too often this isn’t the case. We are asking you to share your experiences and help improve neurological services for everyone affected by neurological conditions throughout Ireland.

Share your experiences by completing the My Neuro Survey, as taking part can make a huge difference. The survey findings will help NAI build a picture of treatment, care and support for people affected by neurological conditions in Ireland.

Who can take part?

Anyone with experience of dystonia or another neurological condition can take part.

You must be living in England, Scotland, Wales, Northern Ireland or Republic of Ireland.

There are 3 different surveys. The most suitable one for you will depend on your age and whether you have dystonia or not. They are:

• An adult’s survey – for people (18yrs or older) with dystonia
• A young people and children’s survey – for people under 18yrs with dystonia you can complete the survey with them or, you can complete the survey on their behalf.
• A carers’ survey – for people (18 yrs or older) who support someone with dystonia, including parents, spouses, and all types of carers and people who provide support.     

Complete the #MYNeuroSurvey at SURVEY and find out more details about the survey on our dedicated web page at My Neuro Surve

To request a paper copy of the survey please e-mail advocacy@nai.ie

Please Note: Survey Closes November15, 2024