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Whether you are living with a disability or supporting someone who is, this event promises to be a truly magical experience. It’s more than just motivational; it’s a chance to…

A research team in UCD is currently conducting a study on how language is affected in people with cervical dystonia (CD) and would like to invite you to participate in…

Share Your Experiences of Living with Dystonia The Neurological Alliance of Ireland has partnered with the Neurological Alliance of England and the other alliances in the UK to produce three…

Summary for the Dystonia Community DMRF is thrilled to share this highly anticipated lay summary of the Samuel Belzberg 6th International Dystonia Symposium (IDS6), held in Dublin, Ireland last year.…

Bernie Drumgoole, Marie Drumgoole, Caitriona Williams, Clodagh Mooney Duggan, Lauren Flanagan We would like to say a huge Congratulations and Thank You to all the ladies who took part in…

Thanks to everyone (35 organisations this year!) for your support of the upcoming Get Rare Aware campaign, launching next week. A few asks for you. We need patient voices for…

This year the VHI Womens Mini Marathon will take place on Bank Holiday Sunday 2nd June 2024. We would love to have you join us on the day for Dystonia Ireland and…

Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.…